August 01, 2014
13th June 2014:
Today we went to the ASO's Grainger Studio for a schools' Meet The Orchestra event. Jay Laga'aia performed Peter and the Wolf, and the conductor gave an explanation of the instruments. After the performance MonkeyBoy and F spoke to the 2nd Percussionist. When F told him he was interested in drumming, the percussionist took both kids up on stage to play the bass drum. F was absolutely stoked, and not long after this he got his own sticks and a practice pad and is having lessons with Monkey-Boy. The really awesome thing he learned from this experience was that if you take a risk and talk to people about things you are interested in, really cool things can happen.
E made her first stop motion Lego movie using the iPad app. She designed the scenes, planned how they would be photographed, executed the movements and edited the movie, inc adding sound effects.
F had been saving pocket money for a few months to be able to buy the Lego Technics monster truck. It is designed for kids 9-16, and he assembled the entire thing over 52 steps by himself. He problem solved one very tricky step by himself.
F has spent the past few days using the Lego Digital Designer program to put together the Millenium Falcon, which is 300 pages of instructions.
Today he designed and built a catapult out of Lego, and is using it to launch pompoms.
Discussed genealogy, starting with Lego minifigures in E's story and then looking at our own family tree back to 1600s.
Lots of Lego movie making, Lego story play and F created a replica Lego living room in great detail.
F is creating and drawing his own imaginary animals. E is doing a lot of drawings for a story book she is going to write.
E using Magic Sand to practice cutting techniques and holding a knife correctly. I think she's finally got it.
We spent 3 days at Victor Harbor, where we were whale watching for Southern Right Whales over 3 days. Day 1 we saw mother and calf at Bashams Beach but the weather was too rough on the other days. We spent some quality time scootering as a family for the first time along the esplanade. Walked around Granite Island and were almost blown off our feet. Learnt that even the whales hate the wind that strong.
We started our first Geocaching search whilst there and discovered two items after searching for a few others that couldn't be found. The kids are very keen to continue with the "treasure hunts"!
The kids both earn pocket money each week and have savings goals. They count their money and work out how much more they need to save and how long this will take. Sometimes they negotiate extra chores to earn more money. They go to the store and pay the salesperson themselves.Their confidence, particularly F's, has increased dramatically by just this simple interaction. They also are getting a deal of satisfaction from reaching a goal that has meaning for them.
We started her with distance ed this year along with F-Man and lasted one term before I lost my freaking mind with the amount of work I as the parent/supervisor (read "full time teacher") was expected to do, in order to ensure my kids got a second rate education. Screw that.
We are now bona-fide registered unschooling homeschoolers. What that means is that we take a natural learning approach to their education. Kids dont need to sit at a desk or computer and do worksheets to learn. Learning happens every day as part of life. It happens in the car on the way to the shops as we discuss religion. It happens as we are saying goodnight when suddenly a conversation about genetics is somehow begun. It happens when they talk about their Lego minifigures' relationships and we get out our family tree, dating back to the 1600s.
So here's the beginning of our unschooling journey. Its been 2 months now and we've been de-schooling all four of us, trying to become de-institutionalised. That's the hard part. From here on, I'm documenting what the kids do, the resources we use and the learning that occurs.
June 10, 2013
When you have a kid with special needs, there will undoubtedly come a time that you wonder if a traditional school environment is the right place for them. We didn't have that worry until this year. He enjoyed school, to the extent that he didn't want weekends or long holidays. He wanted to be at school, learning.
Then he got to Yr 2 and there were signs that things were not going as well as previous years. Stomach cramps. Frequently. Some of them were fake - to get out of school (telling in itself, right?) - some of them were real and clearly very painful, with no food-related pattern to them. Reports of negative behaviours in the classroom increasing. Kids being deliberately mean to him. Not liking school at all anymore. "Its BORING. Nothing is interesting. I should be doing Year 4 work!" And he was right. He does Yr 5 work at home.
Those were the little things. Then the BIG things started.
1. His teacher knows he cant handle more than two pieces of information at a time, is extremely literal, and that he has attention issues. So she spends 3 minutes (his friend timed it) in class - in the midst of his hyper moments - telling him how he needed to take responsibility for his learning and blahblah about his potential and he has to stop behaving the way he is. Erm...NEP, anyone? The conversation about his SPD? Being assessed for ASD? Anyone in there??? A 7yr old ASD kid take responsibility for his learning? Are you on crack????
F-Man asked me later that evening "what does 'potential' mean?" She made him sit through a lecture that he had no hope of understanding, blaming him for the results of his own disability. Good work, that.
2. Not just one, but 4 ASD kids in one class, with an SSO for 15 minutes in the morning. No other support. No pull-outs, no OT, no breaks. Crackheads, clearly.
3. No supervision for the spectrum kids that get in trouble every single day for being extrememly rough with other kids. Hurting people (intentional or not, kids get hurt) every single day. There was never any change to the supervision levels, and the school consistently blamed other kids for what was happening. Blamed my kid for trying to defend himself. One kid is in the office weekly for the same behaviours and has been for 3 years! The definition of insanity is doing the same things and expecting different results. Insane from crack.
4. We made our feelings about F-Man being in that particular class VERY clear at the end of last year due to a long-standing issue with one of the ASD kids who would be in with him. This boy has been consistently aggressive towards him since pre-school, stabbing him with a sharpened pencil in Reception being merely one of many incidents. So they put them in the same class. And the crap keeps happening. Well duh. Here, have a pipe.
5. We agreed on the NEP in week 5 of Term 1. Everything in it was ignored. Everything we mentioned about how F-Man feels about certain things, how he thinks, how he approaches situations, what he can and cant do, psychologically speaking. "He wont ask for a break. It wont ever occur to him. You have to give him the break card." So of course, no break card was ever given. What the actual fuck, even?
6. A report from the teacher for his ASD assessment in which she wrote "F-Man occasionally reaches an appropriate level of work, with significant scaffolding" which in normal speak means that "most of the time he doesn't do enough Yr 2 work to pass, but if we give him heaps and heaps of help, then he can sometimes manage Year 2." Last year - Year 1 - he was doing Year 3 work with no "scaffolding" at all. Hmmm...what is this telling you??? At home he is coming up with the concept of algebra all by himself. I give up.
That report made me feel sick. He was gone within the week, leaving the staff to think "what the hell just happened?" I'm sure.
A week after he left, Monkey-Boy mentioned to him "you seem happier". He replied "since I left school, I haven't had to worry about B (arch nemesis with ASD) anymore."
After testing, he was immediately put up a year level with his distance ed school, the principal saying he was "more than capable of at least Yr 3 level."
Not surprisingly, the stomach cramps have disappeared completely.
June 06, 2013
In every ASD Facebook group or page that I am part of, inevitably someone new pops up and asks "We are having our child assessed soon. I've no idea what to expect. What do I need to do to prepare?"
My answer: Write down everything. And I mean everything.
Every little thing that you remember about your child from the day they were born about the way they did things, how they slept, how they ate, developmental milestones, behaviours that weren't quite right, things you thought were a bit strange but you couldn't put your finger on what was going on. Wouldnt sleep unless wrapped tight as a bug? Write it down. Screams at hand dryers in bathrooms? Write it down. Changes the type of voice used sometimes? Write it down. Cant handle paint colours being mixed together? Write it down. Takes a long time to respond to questions? Write it down.
Spend weeks doing this. Every time a thought pops into your head, a vague memory from years ago perhaps, jot it down. Write a catalogue of your child's behaviours and put them into groups. If you are having an ASD assessment, match them against the DSM5 criteria. Otherwise just put them into logical groupings: development, communication, sensory, behavioural, social. Print it up and take it with you to your first appointment and watch the doctor fall over in amazement and gratitude. It makes their job so much easier when there is a clear list of the issues at hand, and they take you far more seriously than if you (like so many) sit down and in a moment of anxiety forget every important thing you ever knew. Sometimes the Parent Questionairre they give you doesn't contain the right questions to elicit all the pertinent facts, or the clinician doing the assessing doesn't probe deep enough. Hell, if you have to, take videos of your child so they can see for themselves what may never present in a clinical setting. If you have everything that you know about your child in black and white in your words it will be more powerful than you can imagine.
June 05, 2013
There is a neatly stapled pile of papers in my house tonight. They confirm my son has special needs, and that he will always have them. That he is not like other kids and never will be. That my life will present many more challenges than the average parent's.
Today's mail contained the thing I have been waiting 6 years to receive: F-Man's Diagnostic Assessment Report.
With that piece of paper comes an official label and as we know, people love labels. E specially those who decide if you should get any help. His label is Aspergers, which from July 1 will be known as Autism Spectrum Disorder when DSM5 kicks in. He met every single criteria, not just "must meet two of 5". High achiever.
Its weird, seeing in writing that professionals recognise in him what I have for years. A verbal confirmation is one thing: It's a tick in a checkbox, a chance to flick the doubting husband the metaphorical Bird, and a surprising sense of relief.A 12 page report with observations of behaviour is something entirely different. It's a shock to read about his functional difficulties & how clearly he struggles with communication and social skills.
I have spent countless hours over those 6 years wondering "well maybe it's not anything serious, maybe it's just (insert random excuse for behaviour)" while at the same time being certain that he had Aspergers. Second-guessing myself for 6 years. That's a lot of not trusting my intuition. I hope I have finally learnt that lesson, for my intuition has turned out to be right every single time, but I rarely listened to it. I'm none too bright sometimes.
Now we have it written in unequivocal black and white. No more arguing-with-self about it. Our child has Autism.
There is a neatly stapled pile of papers in my house tonight, which will allow our child access to services he has needed his entire life.
Let's get this show on the road.
F-Man is a dude who needs structure. Or to be doing exactly what he is interested in. Then its all good. No structure = complete and utter chaos and several meltdowns (mostly mine). So I wrote up a School Day Schedule for him, dividing the day up into roughly half hour segments:
- online lesson
- food/free play
- specific school-focussed bookwork
- lunch break/free play
- a learning activity from our big list of fun things to do
- some more OT
- and finally some literacy or reading aloud
|Quest 1: Bug Truck has 7 wheel drive, adding stability and traction control during racing across chenille bedspreads.|
It's a start.
May 16, 2013
Starting homeschooling is weird. Distance education is weird, even though I did it myself as an adult to finish high school.
At the Year 3 level, there are 4 half hour online lessons a week, one in Japanese. The others are concentrating solely on maths at the moment. There's no set work to do. That's it. Half an hour versus 6 hours a day. It seems wrong somehow. People talk about "de-schooling" your child when they leave the school system to get them out of the all-day every day mindset, but it's me that needs the de-schooling. It feels like there should be a whole lot more learning going on. Should there be a whole lot more learning going on? I've no idea.
Getting F-man to do additional work, like learning additional math concepts, practicing handwriting and spelling is like sending him down the coal mine. Worst thing in the world! How could I treat him this way? I'm not adverse to telling him he can do the work or go back to school.
I know. Parenting fail.
I've spent an extraordinary amount of time on Pinterest finding homeschooling ideas and I know I should put together some sort of list or something. A go-to list for each day, giving him free choice of what to focus on. My head is so scattered that it hasn't happened yet. 3 weeks into term! I'm failing him already! He will never get into university! Ugh.
Anyone got advice? How on earth do you figure out how to do this thing? Let him lead? Give him choices and insist on work each day? Just do what the school expects? Help...before I scar him for life!